"Хочу быть, как все" : собираем средства для Киры Пещур на покупку специализированной инвалидной коляки

"Хочу быть, как все" : собираем средства для Киры Пещур на покупку специализированной инвалидной коляки
29 Июля 2017
  История маленькой пинчанки – Киры Пещур –  известна, пожалуй, многим. Девочке с редким генетическим заболеванием – спинальной мышечной амиотрофией – жители Беларуси и других стран не так давно собирали средства на покупку аппарата неинвазивной вентиляции легких. Благодаря им было собрано 12 600 евро.

  В № 97 «ПВ» за 2 декабря 2016 года в публикации под названием «Второе дыхание» мы рассказали непростую историю семьи Киры Пещур. 

  Редкое генетическое заболевание беспощадно – в два с половиной года девочка не может ходить, ползать, удерживать голову. Заболевание ведет к атрофии мышц всего организма. Но, вопреки всему, мама девочки верит, что Кира сможет сделать свой первый «шаг», пусть и очень особенный – с помощью дорогостоящей инвалидной кресло-коляски Skippi. 

  – Кирюша – очень жизнерадостный ребенок, любит заниматься творчеством, — рассказывает Юлия Пещур, мама девочки. – Она лучик света для нас и безмерная радость. Но самым страшным для нашей семьи является то, что заболевание неизлечимое. Мы хотим сделать все для того, чтобы ребенок был счастливее. И несмотря на то, что наша жизнь – это вечная борьба (реабилитации, ежедневные упражнения, массаж и т.д.), мы очень рады, что Кирюша у нас появилась. Больно осознавать, что доченька никогда не сможет передвигаться самостоятельно. Но надежда есть – это дорогостоящая инвалидная кресло-коляска Skippi,  стоимость которой 8620$. Скажу честно, обращаться за помощью и что-то просить нелегко. Но когда на кону здоровье и счастье твоего ребенка, забываешь о гордости. Для Кирюши специализированная коляска – это возможность жить более самостоятельной жизнью и меньше зависеть от мамы. 

Протянуть руку помощи просто! 

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  Наталья ЛЕШКЕВИЧ

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